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News and Updates - July 2018

From the ROCC Desk

Interoperability and Health Data Roundup

Optimizing the use of health information technology and electronic health record (EHR) data is a current priority across federal agencies and departments. Here is a look at what's happening around the subject of interoperability and using electronic data for research:

Data standardization issues remains a critical to research, and AAMC would like to hear from you. What tools do you find the most useful and are your engaged in any partnerships? For example, the Observational Health Data Sciences and Informatics (OHDSI) collaborative uses the Observational Medical Outcomes Partnership (OMOP) common data model as a platform for standardizing data. What other partnerships exist and what stories can you share about data standardization and research? Please email Anne Berry Schell at aberry@aamc.org.


NEWS

Announcement of the 2018-2019 Emerging Leaders in Health and Medicine
The National Academy of Medicine (NAM) announced the program's new cohort of exceptional early- and mid-career professionals. The Emerging Leaders in Health and Medicine program provides opportunities for participants to receive mentorship and collaborate with NAM members and other experts. Read More

Report: Returning Individual Research Results to Patients
The National Academies of Sciences, Engineering, and Medicine released a report describing how researchers and institutions should consider sharing individual-specific findings with study participants and related recommendations. Read More

NIH Awards with More Long-Term Funding
This article describes two NIH awards that allow researchers to spend more time on science and less on applying for grants. Read More

Increasing Veteran Access to Clinical Trials
The Department of Veterans Affairs (VA) and the National Cancer Institute (NCI) have established a partnership to enable more Veterans to participate in cutting-edge clinical trials. Read More

PERSPECTIVES

The Latest Research from PCORI and Future Outlook
In a recent blog post, PCORI Executive Director, Joe V. Selby, MD, MPH, highlights the latest publications from several funded studies. Read More. Additionally, the webinar recording of Dr. Selby's presentation to the ROCC community about PCORI's achievements in comparative clinical effectiveness research and future outlook is now available online. View Webinar

What is the Academic Health Sciences Library's Role in the Learning Health System
In this guest post on the National Library of Medicine Musing from the Mezzanine blog, Philip Walker, MLIS, MSHI, shares ideas on ways academic medical centers can better integrate libraries, and the services they provide, into the framework of a learning health systems. Read More

FDA Budget Matters: A Cross-Cutting Data Enterprise for Real World Evidence
In the FDA Voice blog, Commissioner Scott Gottlieb, MD, describes FDA's commitment to expanding the use of real world data and evidence and FDA's proposed $100 million medical data enterprise that would use information from electronic health records. Read More

LITERATURE

New England Journal of Medicine Introduces "Frontiers in Medicine" Series
The series of articles will highlight new technologies that offer current application or future promise and "will illustrate the bridge between scientific discoveries and their development into clinically useful tools." Read More. The first article in the series is about an emerging immunotherapy treatment for hematologic cancers. Read More

ADVOCACY CORNER

AAMC Responds to NIH NIGMS RFI on Faculty Diversity
The AAMC July 20 submitted a letter to the National Institutes of Health (NIH) National Institute of General Medicine Sciences (NIGMS) in response to its Request for Information (RFI) on Strategies for Enhancing Postdoctoral Career Transitions to Promote Faculty Diversity. Read More

OHRP Announces Draft Guidance on Three Burden-reducing Provisions of the Revised Common Rule
On July 20, the Office for Human Research Protections (OHRP) announced the availability of three draft guidance documents on the revised Common Rule relating to the three burden-reducing provisions that regulated entities are permitted to adopt during the delay period. Read More

Senate HELP Committee Holds Hearing on Reducing Health Care Costs While Improving Quality
Witnesses at the July 17 hearing included CEOs from two AAMC member institutions: Jeffrey Balser, MD, PhD, president and CEO, Vanderbilt University Medical Center, Dean, Vanderbilt University School of Medicine; and Steven M. Safyer, MD, president and CEO, Montefiore Health System. Read More

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