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Washington Highlights: October 27, 2006

AAMC Comments on NIH Proposed Genome Policy

The AAMC Oct. 19 sent a letter commenting on the National Institutes of Health (NIH) Genome Wide Association Studies (GWAS) proposed data sharing policy. The letter expressed strong support for the overall goal of advancing science for the benefit of the public through the creation of a centralized NIH GWAS data repository that will facilitate research and better enable medical science to address the health needs of people based on their individual genetic information.

However, the AAMC identified the following three concerns:

  • the potential risk that identified genomic associations could be used to discriminate and limit eligibility for insurance, education, and employment;

  • the need to balance the competing interests of public health and science in rapidly making these kinds of databases available with the legitimate desire of the creators of these data sets to study their data and publish their observations; and

  • the necessity for NIH to provide the resources required to ensure that investigators and their institutions are able to comply with this policy and its requirements.

Information:
Howard Dickler, Director
AAMC Biomedical Health Sciences Research
hdickler@aamc.org
(202) 828-0567

NIH Requests Roadmap Input

The National Institutes of Health (NIH) Oct. 20 issued a request for information (RFI) soliciting input from the scientific community, health professionals, patient advocates, and the general public on innovative and cross-cutting initiatives to improve and accelerate biomedical research. The request is an initial step in the process of identifying new "Roadmap" trans-NIH strategic initiatives for FY 2008. The deadline for responses is Nov. 17.

The NIH expects to spend $30 million to $50 million per year for approximately 5 to 8 new 5-year (or in exceptional cases up to 10-year) initiatives. The RFI invites input and ideas on ways to:

  • address specific barriers to basic, translational, or clinical research through development of novel tools, technologies, services; and

  • fill knowledge gaps that impede research across a broad spectrum of health science.

Congressional Casualty List

HOUSE
Running for Senate
Sherrod Brown (D-Ohio)
Benjamin Cardin (D-Md.)
Harold Ford, Jr. (D-Tenn.)
Katherine Harris (R-Fla.)
Mark Kennedy (R-Minn.)
Bernie Sanders (I-Vt.)

Running for Other Office
Bob Beauprez (R-Colo.)
Jim Davis (D-Fla.)
Jim Gibbons (R-Nev.)
Mark Green (R-Wis.)
Ernest Istook (R-Okla.)
Jim Nussle (R-Iowa)
Butch Otter (R-Idaho)
Ted Strickland (D-Ohio)

Retiring
Mike Bilirakis (R-Fla.)
Sherwood Boehlert (R-N.Y.)
Lane Evans (D-Ill.)
Joel Hefley (R-Colo.)
Henry Hyde (R-Ill.)
Bill Jenkins (R-Tenn.)
Jim Kolbe (R-Ariz.)
Bob Ney (R-Ohio)
Major Owens (D-N.Y.)
Mike Oxley (R-Ohio)
Martin Sabo (D-Minn.)
Bill Thomas (R-Calif.)

Defeated in Primary
Cynthia McKinney (D-Ga.)
Joe Schwarz (R-Mich.)

Defeated for Other Office
Ed Case (D-Hawaii)
Tom Osborne (R-Neb.)

Appointed to Senate
Bob Menendez (D-N.J.)

Appointed to Other Office
Christopher Cox (R-Calif.)
Rob Portman (R-Ohio)

Resigned
Randy "Duke" Cunningham (R-Calif.)
Tom DeLay (R-Texas)
Mark Foley (R-Fla.)

Died
Robert Matsui (D-Calif.)

SENATE
Retiring

Mark Dayton (D-Minn.)
Bill Frist (R-Tenn.)
Jim Jeffords (I-Vt.)
Paul Sarbanes (D-Md.)

Elected to Other Office
Jon Corzine (D-N.J.)